Health
Bankruptcy, Bioethics, and Broken Trust: Inside 23andMe’s Data Sale

- Bankruptcy Chapter 11 was filed with a U.S. bankruptcy court on March 25, 2025, against 23andMe following or because of prolonged periods of financial instability and legal damages incurred after a major data breach in 2023.Â
- In the course of bankruptcy, the assets of the company would be liquidated. These assets might have included genetic data from more than fourteen million users, thus again putting into question issues of global privacy, consent, and corporate responsibility. The winter is ironically cold on whether data access would be significantly circumscribed and on what reasonable terms by regulatory authorities.
Once a pioneer in consumer genomics, promised accessible health insights through a simple at-Ì첩ÈüʹÙÍø DNA test. With a reported user base of over 14 million globally, the company became synonymous with direct-to-consumer genetic testing.
Its trajectory shifted as years of operational losses, security breaches, and lawsuits eroded stability. Legal disputes spanned the United States, the United Kingdom, and Canada. In January 2025, the company initiated workforce reductions. By March, it filed for bankruptcy protection under Chapter 11 in the U.S. Related actions under UK insolvency law have been less public but are assumed, given the user base.
What Happened to the DNA?
The company’s most commercially valuable asset was not its brand, lab equipment, or physical inventory. It was user data.
Millions of individuals had voluntarily submitted DNA samples, often under the impression that their data would be anonymised and used for research within limited contexts.
During the bankruptcy proceedings, this data was reclassified as a commercial asset and made available for acquisition. Regeneron Pharmaceuticals has emerged as the lead bidder for these assets. Other buyers have reportedly expressed interest, though the full list and access terms remain under court review.
Consent forms signed by customers often included clauses about research sharing, but few anticipated this would translate into unrestricted commercial transactions under distress sale conditions.
The reach was global. Individuals from the UK, EU, North America, and Asia had data included in the sale.
Regulatory Grey Zones
The sale of personal genetic data during bankruptcy raises regulatory and ethical questions. Laws such as the UK’s General Data Protection Regulation (GDPR) and the EU’s data protection frameworks offer some recourse, but genetic data sits in a complex category—personal, familial, medical, and permanent.
Can consent be extended through liquidation?
Do buyers inherit responsibilities for data handling?
Who ensures enforcement across borders?
Regulators in the UK, EU, and US have acknowledged concerns but are proceeding cautiously. The UK’s Information Commissioner’s Office issued a brief stating that they are “reviewing the matterâ€�, but no public enforcement actions have been taken.
The lack of coordinated oversight across jurisdictions leaves gaps that companies can legally exploit, especially under distressed financial conditions.
Brand Implications
Globally, the biotech sector now faces a trust deficit.
The 23andMe collapse signals a broader vulnerability for consumer-facing health brands. Transparency, consent, and ethical data use are no longer optional—they shape whether a brand can operate at scale or survive a crisis.
Consumer sentiment has shifted. Reviews of DNA testing services have dropped. Social media scrutiny has increased. Competitors are being asked to clarify their data governance policies.
This is not just a US or UK issue. Data submitted in Canada, Australia, and the EU has potentially been included in resale agreements. Some individuals have begun legal enquiries in their own countries.
How This Affects Consumer Trust
The long-term implications for consumer genomics are serious.
Search interest in DNA testing has declined globally. Major brands report lower engagement and higher customer support queries related to privacy. One European firm noted a 20% increase in opt-out requests for research participation.
Reddit, Discord, and privacy forums are filled with threads on the risks of personal genomics. Many users are now questioning whether the benefits of testing outweigh the risks of exposure.
This reaction spans regions, ages, and digital literacy levels. The 23andMe case has triggered a global rethinking of how sensitive health data should be handled—not just legally, but ethically.
Closing Reflections
The 23andMe bankruptcy marks a turning point in the relationship between consumers and personal genomics brands. What was once seen as a pathway to personal empowerment through data has become a cautionary tale about trust, transparency, and long-term accountability.
Brands operating in the genetic testing space—and more broadly, in digital health—now face higher scrutiny. Consent cannot be treated as a one-time checkbox. Data must be treated as a responsibility, not just an asset. And the ethical handling of that data must extend beyond the life of a company.
This episode forces a global conversation about what rights consumers truly have over their biological information and what responsibilities brands inherit when they choose to collect it. The reputational costs of getting this wrong are no longer hypothetical.
Whether you’re a regulator, a startup, or an established healthcare brand, the 23andMe case should prompt critical evaluation of your data governance frameworks.
Because trust, once broken, is hard to recover.